Parkinson’s Disease

Individual Parkies Taking Charge
Bruce

Individual Parkies Taking Charge

There’s been a bunch of articles recently about average Jane or Joe Parkies taking charge of their lives and speaking out.  Shall we review a few? 1. Mike Wood Lifts Weights Mike Wood, who lives in La Grande, Oregon, learned he had Parkinson’s three years ago, when he was 58.  At first he was devastated …

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Parkinson’s Ping-Pong Panacea
Bruce

Parkinson’s Ping-Pong Panacea

I’ve written about (click!  click!  click!  click!  click!) and have been frequently attending the weekly Parkinson’s night at the nearby Westchester Table Tennis Center.   About ten Parkies come each week, and the format is basically the same:  we do some stretching exercises, we watch two of the instructors demonstrate some basic moves at one …

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“Time” for Parkinson’s
Bruce

“Time” for Parkinson’s

The online Time magazine has a great article on Margaret Bourke-White, the famous Life magazine photographer who developed Parkinson’s disease in 1953 and fought it tooth and nail so she could continue taking pictures.  But the 1950s were not a good time to come down with Parkinson’s; she didn’t have the drugs we take today (including …

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Drug Regimen Updated Again!
Bruce

Drug Regimen Updated Again!

Here’s my latest drug regimen, which my neurologist updated to increase the Clonazepam and Nortriptyline, which should tamp down the anxiety that was ruthlessly ruling (rudely ruining? routinely uprooting?) my life. I’ve included medications prescribed by my primary care physician, such as Androgel and Simvastatin. Morning R = Ropinirole 0.5 mg; S = Sinemet 25/100; …

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Tweak Your DBS Voltage with Your iPhone!
Bruce

Tweak Your DBS Voltage with Your iPhone!

Paul Detlefsen, age 44, of Iselin, New Jersey, has had Young Onset Parkinson’s disease for eight years.  Like a lot of us!  However, he is the first person to be able to control his DBS voltage with his iPhone.  The iPhone communicates with the DBS battery implanted in his chest via Bluetooth. The advantages are …

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DBS Updates: Now Used for Depression, Too
Bruce

DBS Updates: Now Used for Depression, Too

DBS, or Deep Brain Stimulation, has been an option for treating Parkinson’s disease since the late 1980s.  Basically, surgeons drill two holes in your skull and insert tiny wires into the brain; the wires electronically stimulate the part of the brain that controls movement but has gone kaput because of PD.  The wires run under …

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Parkinson’s Disease Helps Save a Marriage – And Its Sex Life…
Bruce

Parkinson’s Disease Helps Save a Marriage – And Its Sex Life…

…although not in the way you’d expect. This week’s New York Times has a long article on open marriages, and the main couple that the article discusses are Daniel and Elizabeth.  Here’s a summary of their story: Daniel and Elizabeth were happily married in their 20s, but Elizabeth’s interest in sex soon diminished, leaving Daniel …

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The Perennial Closet + Yet Another Symptom
Bruce

The Perennial Closet + Yet Another Symptom

Here’s something that happened to me this week. I work in a public charter school in the Bronx, and I was in a 5th Grade science class while the children were doing Internet research projects on cells.  The teacher had created a master website list of all sorts of child-friendly sites that the children could …

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Young Onset Parkies In the News
Bruce

Young Onset Parkies In the News

Here are two contrasting stories of Young Onset Parkies in the recent news. 1.  Top Reader Response in This Week’s New York Times Chris, in San Francisco, wrote a reader response to a NY Times article about the U.S. House of Representatives’ repeal of the Affordable Care Act (a.k.a. Obamacare).  His comment received the most …

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Preparing to Be – Or to Care For – a Special Needs Senior
Bruce

Preparing to Be – Or to Care For – a Special Needs Senior

A Parking Suns visitor, Elena McDermott, recently sent me a swell list of online resources for people who are senior and disabled – and for their care givers.  Let’s review them one-by-one: Transportation Options for Older Adults thoroughly reviews what possibilities are open to you when you can no longer drive a car – and what questions …

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