Other People’s Stories

Individual Parkies Taking Charge
Bruce

Individual Parkies Taking Charge

There’s been a bunch of articles recently about average Jane or Joe Parkies taking charge of their lives and speaking out.  Shall we review a few? 1. Mike Wood Lifts Weights Mike Wood, who lives in La Grande, Oregon, learned he had Parkinson’s three years ago, when he was 58.  At first he was devastated …

Continue Reading
“Time” for Parkinson’s
Bruce

“Time” for Parkinson’s

The online Time magazine has a great article on Margaret Bourke-White, the famous Life magazine photographer who developed Parkinson’s disease in 1953 and fought it tooth and nail so she could continue taking pictures.  But the 1950s were not a good time to come down with Parkinson’s; she didn’t have the drugs we take today (including …

Continue Reading
Writing in Kindergarten
Bruce

Writing in Kindergarten

This week I was in a kindergarten class at my school, sitting next to a girl who was writing in her journal.  Her teacher’s instructions were to write anything she wanted to write, using words she knew from having studied them throughout the year. The girl wrote the following possibly sad? revealing? story.  She needed …

Continue Reading
Tweak Your DBS Voltage with Your iPhone!
Bruce

Tweak Your DBS Voltage with Your iPhone!

Paul Detlefsen, age 44, of Iselin, New Jersey, has had Young Onset Parkinson’s disease for eight years.  Like a lot of us!  However, he is the first person to be able to control his DBS voltage with his iPhone.  The iPhone communicates with the DBS battery implanted in his chest via Bluetooth. The advantages are …

Continue Reading
DBS Updates: Now Used for Depression, Too
Bruce

DBS Updates: Now Used for Depression, Too

DBS, or Deep Brain Stimulation, has been an option for treating Parkinson’s disease since the late 1980s.  Basically, surgeons drill two holes in your skull and insert tiny wires into the brain; the wires electronically stimulate the part of the brain that controls movement but has gone kaput because of PD.  The wires run under …

Continue Reading
Parkinson’s Disease Helps Save a Marriage – And Its Sex Life…
Bruce

Parkinson’s Disease Helps Save a Marriage – And Its Sex Life…

…although not in the way you’d expect. This week’s New York Times has a long article on open marriages, and the main couple that the article discusses are Daniel and Elizabeth.  Here’s a summary of their story: Daniel and Elizabeth were happily married in their 20s, but Elizabeth’s interest in sex soon diminished, leaving Daniel …

Continue Reading
Young Onset Parkies In the News
Bruce

Young Onset Parkies In the News

Here are two contrasting stories of Young Onset Parkies in the recent news. 1.  Top Reader Response in This Week’s New York Times Chris, in San Francisco, wrote a reader response to a NY Times article about the U.S. House of Representatives’ repeal of the Affordable Care Act (a.k.a. Obamacare).  His comment received the most …

Continue Reading
Preparing to Be – Or to Care For – a Special Needs Senior
Bruce

Preparing to Be – Or to Care For – a Special Needs Senior

A Parking Suns visitor, Elena McDermott, recently sent me a swell list of online resources for people who are senior and disabled – and for their care givers.  Let’s review them one-by-one: Transportation Options for Older Adults thoroughly reviews what possibilities are open to you when you can no longer drive a car – and what questions …

Continue Reading
22 Push-Up Challenge to Raise Awareness of Veteran Suicide – Week 3
Bruce

22 Push-Up Challenge to Raise Awareness of Veteran Suicide – Week 3

Last year Andy Dousis, a colleague at work, challenged me (and others) to do 22 push-ups a day for 22 days to raise awareness that every day in America some 22 military veterans commit suicide.  As part of the challenge, I had to post my push-ups on YouTube, Facebook and here. Andy challenged me again …

Continue Reading
Canadian Parkie in the News
Bruce

Canadian Parkie in the News

Yesterday’s CBC News (in Canada) reported on Robyn Levy, a young woman with Parkinson’s who fights back through exercise and art.  (She was also a fellow official blogger of the last World Parkinson Congress!) From the article: In the ten years that she’s battled Parkinson’s, she’s written a published book, taken up painting as a hobby, and become …

Continue Reading